Clozapine / Schizophrenia

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My son has been in the Hospital for 6 weeks for schizophrenia. He is on his fourth medicine (clozapine). The first week he was taking 25mg, then 50mg & only heard voices a little, now going on his 3rd week and almost up to 200mg and the voices are stronger and getting a little violent. Is this normal?

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Hi Dennis. I'm here to help. I have a 19 yr old daughter in your same situation. This medicine is poison point blank and the symptoms and side effects only get worse the higher the milligrams and the longer the individuals is on this medication. Stop allowing them to give yr son more and try to talk to someone about winging him off this medicine slowly. I can tell you they're not gonna recommend this because they make a killing off of making us sick off this medicine telling us there's no cure, but have something that will help, send us home and think it's ok for us to walk around like a zombie not being able to function and let our families left to worry about us. They love to keep us unknowledgeable about our natural options and there are some out there. Just read on. I've posted some and they've worked. I never want anyone to go through what I've been through with my baby. It's been a living hell and im gonna continue to spread the word for all those who dont know about this killer drug.

Activated charcoal comes in tablet form and powder for detoxing the body from bad chemicals or poisons. It works fast along with a healthy diet. I'd keep away from sugary foods. Niacin known as B-6 helps with the hormone imbalancing in the brain, hemp seeds are good for omega 3/6/9. It's sold in the bakery ile of walmart and on amazon. Black seed oil has lots of excellent benefits as well.

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Re: Ruth (# 1) Expand Referenced Message

Well my Son is doing a lot better he ended up in the hospital for 4 months he is getting back to his old self but he still has a problem with memory and focusing. He is back in college but again has a hard time concentrating, so far he is hanging in there and wants to finish school. He is taking 400mg of clozapine a day. I understand what you are saying but I can’t take a chance at this time to do any changes with his med. Thank you for the feedback. Glad that is working out for you and your daughter. Can you tell me how you were able to wean your daughter off the medicine?

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3

Denise hi as you notice the mg are increasing and the voices could be a sign of schizophrenia my daughter has this my advice to you is talk to your Dr. and trying get him off this medicine before his systom get worse and seek your options majority of the time the Dr's Aren't telling you the long term effect of the medicine because they like us to be unknowledgable about the worse that could happen

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4

Hi my name is Venus
I was able to wean my son off of various antipsychotics the last one being clozaril. First of all I went to the top psychiatrist in the country he now has offices in the Chicago suburbs. Dr. Daniel Amen. Amen Clinics is where you want to be. He looks at the brain through brain scans and he is very capable. His team sees the more difficult cases. Weaned my son off very slowly. I would cut 1/8 of the pill down weekly. Giving him Omega-3 fish oil from Costco that is very pure. We gave him Gaba, magnesium in the form of a powder, serotonin Amen Clinics makes their own supplements and their serotonin is very good, acidophilus, salus silver not to be confused with colloidal silver, and the black seed oil. The black seed oil was huge in his recovery. It turned out my son had a gangrene appendix. Long story short these medicines hurt him and I believe more than one way. Now we have to get his bladder checked because he's having problems emptying it. And it's believe that it's the medicine that caused a lot of it. But hard to prove. To all trying to get off these horrifical meds, take it slow and steady. This combined with great nutrition, no alcohol or sugar should help tremendously. Also spirituality. I do believe in God that he has guided us through all of this. And of course exercise. My son is doing fine now and is going for his PhD. May heart goes out to all who are trying to get off these poisonous medications. I believe there's a place in Arizona that helps people get off anti-psychotic medication. Best to all!

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5

I don't much about the chlozohine but my daughter was on 256mg of incest sustenna had the same aggressive reaction she's now off all these different psychotic meds. And now when she get aggressive with the voices I give her a St Johns wort and 2 5-htps which seems to calm her raving thoughts down after about 20-30 minutes and the St. John work puts her in calm happy state of mind but I trying keep a close eye on her before her emotion get to out of hand you can tell when things are progressing and when there in a calm state mind.but the bottom line is things don't get any better being on these different psychotic meds only worse. So if the Dr. Can wing them off slowly that's your best bet. Just saying from experiencing it and go through.

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Were any of the mothers of these kids given Yutopar/Ritodrine for preterm labor in the 80’s-90’s?

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Re: Venus (# 4) Expand Referenced Message

Venus when your son was on Clozapine how much was he taking? And was he still hearing voices? The Doc has my son up to 500mg a day. and the voices are getting less. I spoke to the Doc and he wants to wean my son off but he feels e in not ready yet. I say my son is back to about 90% of himself.

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Re: Ruth (# 3) Expand Referenced Message

I spoke to the Doc and he wants to wean my son off but he feels e in not ready yet. I say my son is back to about 90% of himself.

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This breaks my heart to hear this,cause I know exactly what your going through cause im going through it still going through for the dr. to keep increasing his meds yeah that sounds about normal cause this is how they keep us hooked and if you don't put your foot down they'll keep giving them even more until they can no longer function but I don't agree with it at all with my daughter she's 20 yrs old and been dealing with schizophrenia/bipolar for the last 4 years she also hears voices but is now on 5mg of abilify and 2mg of benztropine for the side effects it also as well as others seem to make her aggressive so there are other calming agents over the counter like St John's worth, gaba, dream water at CVS to help them sleep, mango neuro drinks all these work and helps you get through the day it's not a cure from the schizophrenia/bipolar or the psychosis but it receives thier stress alot by working with the neurotransmitter in the brain all I can say is don't allow this theres neurologist out there that can help

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Dennis (# 2) --

Hi Dennis, it's been a while since I've been on here. My daughter's doing much better, though still not quite herself. She's now taking Abilify 5mg, and Benztropine 2mg for side effects but I've been noticing it making her aggressive, so Iv'e been seeking other solutions. I did come across Genexa Stress Relief and Dream Water which seems to help with anxiety & irritability, inability to concentrate, sleeplessness & fatigue. And the dream water is for sleep. I purchase both at CVS and so far they're awesome. They both have Gaba in them, Aconitum napellus 12×Hpus, which is for: stress, agitation, hypertension; And also calcarea carbonic for anxiety, & sleeplessness. I've also been working with St John Wort which is awesome for mood. {affiliate link added}

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Re: dennis (# 2) Expand Referenced Message

Hi denise my daughter is completely back to herself all psychosis is gone no more voices at all hers had to do more with a hormonal imbalance the pyhc.meds weren't helping they really mess with the neurotransmitter in the brain a lot so you cant think straight or remember anything half the time its been a long road for me but one thing I didn't continue to do is keep giving her the different pyc meds that I seen was making matters worse I began giving her Nero drinks to help her sleep, gaba tablet to help with her transmitters in her brain and anxiety & stress plus shes eating healthy what was the reason he began these meds to begin with?

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Re: Dennis (# 8) Expand Referenced Message

Yeah alright - then that's a huge start. I'm glad to hear this. My daughter's completely back to herself. Keep in mind the psych meds have a big effect on the neurotransmitter in the brain. I found that gaba tablets at CVS are awesome for working with the neurotransmitters in the brain and stress + anxiety. And Walmart sells a mango neuro drink with L-thienin and gaba in it as well for sleep. I'm so happy for you guys.

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Re: Venus (# 4) Expand Referenced Message

Hi venus I'm so proud of you you did good I was reading your testimony and you took alot of the same steps I did with my 20yr old daughter whom also was being treating g for schizophrenia black seed oil is awesome stuff I hear and gabas wonder as well,and so is fish oil,and magnesium all I can say is good job we have to just keep spreading our experience with this inhumane psychotic meds there putting our families on and trying help cause that's my goal no body deserves to live like this and shame on those whom help distribute it

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Re: Ruth (# 1) Expand Referenced Message

Just to add on after trying to get winged off here are some over the counter meds that can help build the brain and the immune system back up salus silver a probiotic that fights bad bacteria, gaba works with neurotransmitter in the brain,fish oil omega fatty acids 3,6,9 nero drinks mango has gaba in it as well as l-thenine serotonin for sleep,plenty of water,

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15

I wouldn't say this is normal but when dealing with psychotic meds probably so cause alot of those meds can make you aggressive like abilify does I know for certain and hadol these meds actually mess up the transmitters in the brain and have terrible side effects so they supply us with stuff like benztropine for the side effect but even that doesn't do much to help the brain is what makes the body function properly

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Re: dennis (# 2) Expand Referenced Message

Dennis
Just out of curiosity what did you do different with your son?

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Re: Venus (# 4) Expand Referenced Message

This is awesome does Dr Daniel Amen have a address?

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18

Not again! apparently the docs have found a new drug called Clozaril. It is usually used as a last line of defense.

Without knowing the details and lacking any medical training; If your son was not showing signs of aggression when they where giving him this medication I would be scared. Yes, psychosis isn't pretty. In defense I will say, when Clozaril works, it is the miracle drug! Yes it really does work for some people.

I wish I could agree that the industry is rigged against us; I think it's an industry that doesn't know how to help us. Hope your son feels better in a couple months or so...

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Hi I don't know if this will help but my daughter is dealing with the voices as well but is currently taking 5 mg of haldol 3×daily & benztropine 3× daily this is for the side effects of the hadol & Gabapentin 100 mg 3× daily she starts out at 8am, 2pm,then again at 8pm her last dose of tabata 8 pm she takes 200 mg just to help her sleep but 100mg during the day these meds seem to really help out with the voices and they work fairly quick it's nice to see her sleep alright and be more herself during the day so far this has been a awesome combination of meds for schizophrenia/bipolar

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20

Keep in mind benzos tend to make some individual aggressive

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Re: Venus (# 4) Expand Referenced Message

My son is on 900mg they even want to increase the dosage to 950 despite my repeated requests l have been ignored my son has so deteriorating that l cannot believe they continue prescribing clozapine please help

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33

Hi I've seen this before with my daughter vistaril work within 15 min to calm them down when this happens I know it's scary, is he taking other meds with the clozapine if you dont mind me asking?

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32

My daughter takes clozapine 75mg 2daily for her phychosis, Divalproex (depako) 250mg tablets 1tablets 2xdaily for sleep works awesome, & takes1/2 tablet of propranolol 10mgs for her anxiety & tension 2x daily & Atropine eye drops 1drop at bedtime under her tongue for her saliva buildup this regimen has been awesome for my daughter she even interested in doing things again and not walking around like a zombie and is coherent

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Re: Violet (# 22) Expand Referenced Message

Hi venus my daughters on clozapine and shes never been better she takes 25 mgs in the morning and 50 mg at night shes no longer hearing voices, she falls to sleep on her own wake up refreshed shes,smiling, dancing, cleaning enjoying life and shes been on over 30 different meds I kid you not and this has been the best shes ever been it does require blood work every week but its well worth it

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Re: Sleepy (# 28) Expand Referenced Message

Hi sleepy my daughter has been on the invega sustena injection and it wasn't functional as well as the Lithium ok but shes been on over thirty different meds and nothing yet compares to what shes on now 25 mgs in the morning of clozapine (Not)clonazepam and 50 mg of clozapine at night she doing awesome her voices are no longer there, shes functioning on her own cleaning house laughing and smiling she not walking around like a zombie anymore but that's all she takes besides her glycopyrrol 1mg for her hyprsalivation maybe she can ask about these meds

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Hi Dennis if you dont mind me asking are there other meds he's taking along with the clozapine?

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Re: A concerned parent (# 5) Expand Referenced Message

My mom is given shots of investa consta or sustena or something like that and it makes her so much worse. The voices don’t come, but she feels vibrations and hears buzzing and in her mind it’s electrical stimulation of the air or sonic weapons or something, and while she had some of these delusions before the shots they’ more frequent and more terrifying to her since the shots.

The main difference is that the shots seem to sedate her so she’s not calling her doctors complaining about her symptoms, or organized enough to try to get a second opinion. She did well on lithium and I think the only reason she gets these shots is so they can bill for a visit and the dispensing of the medication. Probably a medication mark up as well. I just know it makes her worse and she can’t refuse it because she’s on a conditional release from the state hospital. If she’s not compliant she gets put back in.

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Hi Dennis just a up date my daughter once again winded up back in the hospital after taking hadol,bentrapine, and gaba only this time she was transferred to a much better hospital they now have her on 25 mg of clozapine during the day and 50 mgs at night and that's it her psychosis is under control shes talking clearly and is coherent not real talkative but shes more herself thank God oh yeah shes takes Glycopyrrol 1mg for her hyprsalivation (build up of salvia) but overall shes doing better then she ever done no psychosis what so ever my daughters aggression always came from the any type of benzos they always seemed to make her aggressive by any chance could that be the case?

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Re: A concerned parent (# 23) Expand Referenced Message

Thanks Venus for the reply. I also read your comment about Dr. Amen. Called the office and now have the 30 minute phone consultation this Wednesday. Any advice? What was your experience? It is incredible incredibly pricey but I’m in desperation mode....Willing to try anything aside from Clozaril...

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Re: A concerned parent (# 23) Expand Referenced Message

Thanks Venus for the reply. I also read your comment about Dr. Amen. Called the office and now have the 30 minute phone consultation this Wednesday. Any advice? What was your experience? It is incredible incredibly pricey but I’m in desperation mode....Willing to try anything aside from Clozaril...

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