Going Off Sublocade

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After an 18 month battle with Multiple Myeloma cancer, I am finally letting go. The pain is so bad that I can't handle anymore. Does any body know long I have to wait after my last Sublocade injection before I can take opiates that will work? My Dr thinks I should stay on the Sublocade but my DR is not the one with cancer and in pain.

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First of all let me express my deepest condolences for the way that your health has turned out with the cancer. And I don’t know about the drug you’re talking about but I do know about narcotics painkillers because I’m a chronic pain patient and I can only imagine the pain you’re in. As a matter fact I’m having a entire left hip replacement done a week from today so trust me I know about pain. And I wish there was something I could tell you that would be educational or informational but basically we just what I wanted to say is I will be praying for you and I will be praying that you get the type and amount of pain medication that you require to make the last months of your life better.. if you need a friend or someone to talk to just respond to this… May God bless you and keep you safe

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Re: Lori (# 1) Expand Referenced Message

Thank you very much. I hope you recover nicely.

Take Care

Jimi

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The half life of the medication is 40-60 days, and depending how many inj's. you have had it could last even longer than that. I don’t even think the doctor can answer this question as generically it’s different for everyone I’m sure.

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Re: Chulio (# 2) Expand Referenced Message

Thank you Jimi. I am now three months out from my total hip replacement and the majority of the pain is gone but it’s been one hell of a recovery and they had me on Dilaudid at first 8 mg every three hours. I was in the hospital for seven days and nights and for the first three weeks, I was on 8 mg of Dilaudid every three hours, then they changed it after three weeks to one every four hours and so on as the pain started to decrease. But the physical therapy was very difficult and I would have to have a pain pill. I would have to take one prior to the physical therapy because the pain was incredible, but again it’s starting to get better. I don’t really even need to use my cane anymore.

My hip was rubbing bone on bone and it was just horrible and I got really really lucky. I got an excellent surgeon who specializes in joint replacements and he performed the surgery at Saint Helena Hospital at Saint Helena, which was an incredible hospital. I mean it was just so nice and incredible and they gave you a menu and you can call and order food anytime you want. Between eight or nine in the morning and seven at night I wasn’t that hungry due to the pain, but I when the pain got under control, they had these incredible hamburgers and these roasted red potatoes, which I just loved, so I ordered that every day after my appetite came back.

For my regular chronic pain I take 213 mg of methadone daily and I have for about 20 years. And that part of my chronic pain condition for the most part is cured because it takes the pain level down to a maybe three or four, which allows me to function and unfortunately, because I am on such a high dose, it took a lot higher medicine, stronger medicine to relieve my pain, post-op and my I went and saw a pain to specialist only to deal with my pre-surgery and post surgery pain control because that’s what this guy does and he understood everything. And so he has been tapering me off over the months and I am now down to one pill a day and I have that for two more weeks. I may ask him for another couple of weeks, but I don’t know we’ll have to see.

I suggest you go see a pain specialist that deals with chronic pain OK because they know all kinds of different medications that work that are opiates that will help your pain tremendously. That’s their job, that’s what they’re trading trained for, and you know you are going to have to sign a contract where you’re not going to get pills from anywhere else and only from one pharmacy, and you’re not gonna make excuses and yada yada yada, and that you’ll only get a prescription when you have a face-to-face meeting. And you will have to take a urine analysis to make sure you’re taking your medication and not selling it or whatever on the black market. But if you have true chronic pain, then you will be more than willing to sign whatever you have to do to get your pain under control and especially since it’s cancer you know it definitely should be either palliative care or hospice care or a pain management specialist.

I don’t know if any of this will help point you in the right direction but I hope it does and I hope that it helps in some minor way or a major way. Oh, you can contact me if you like if you want to become friends and you know, I hope each other I can help you dealing with coping with your pain and different things that can make it go away that actually don’t include drugs. So let me know if you want to talk to me on a regular basis or whatever. {edited for privacy}

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