Petition - Stop The Dea From Interfering With Chronic Pain Patients. (Page 2) (Top voted first)

Updated

I had signed an old petition "Stop the DEA from interfering with chronic pain patients and their medical professionals." and wanted to see if you could help by adding your name. Our goal was to reach 100 signatures and we need more support. * Update * this petition has been closed. Thanks!

29 Replies (2 Pages)

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22

Re: David (# 1) Expand Referenced Message

The DEA is becoming evermore desperate to justify their existence and big budget allocations. Restricting Tramadol is truly ridiculous, it's not a "recreational" drug at all. It's one of the few drugs that is genuinely effective for certain types of chronic pain, but does not lead to heroin addiction.

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28

I need my medication to walk without pain! I take mine as prescribed. I am 66 yrs. old, not a dope head! I am sorry some people choose to abuse their medicine but for those of us who don’t, interfering with our doctors and our treatment is wrong.

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8

I am looking for sites on the above petitions? This applies to me also as I have no Doctor to write a script.

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20

Re: David (# 3) Expand Referenced Message

Can anybody recommend a Dr. Virginia West VA or northern Virginia any where Please I am desperate to find a doctor.

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23

Re: Mare (# 9) Expand Referenced Message

This is how regular people end up in the streets. Most people do take more than prescribed. Though some never admit it. This is excalty how it starts prescribed or not your still a user just like I . Relax are your panties in a bunch.

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24

How can I help/sign up? Thanks

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27

I was going to sign whatever your petition but apparently it’s already over… I am a chronic pain patient and I have also run in to multiple doctors that are discriminating against people like me and you!!

Fortunately I have a very good chronic pain medical group then I am a patient of that doesn’t just write a script for fentanyl or Dilaudid: It has a multi faceted approach which includes not only physical therapy and medications it also includes a psychologist/psychiatrist whom understand how chronic pain affects our overall lives, our moods, our depression, and the limitations regarding what we can and can not do because of our bodies… They make an individual customized program that works for each patient what works best for them. They even have “family sessions” and “Group therapy sessions“ for our immediate friends and families too understand completely what’s happening within our bodies.

And although they are not the person that’s living in daily debilitating chronic pain they learn how too live with and deal with their beloved ones chronic pain issues which affects them as well.. I pray to God that people/ the public at large AND medical doctors in every field of specialties stop discriminating against the population of people that do not abuse our pain medications. As a matter of fact research has proven that true Chronic pain patients do not get high or abuse their medications because 90% of the time (personally speaking) my medication never completely takes my pain away 100%. All that it does is take the edge off of it just enough so I can function throughout each day; taking care of my tasks and chores and what not. It’s an absolute nightmare Every single day that I/We go through.

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29

Thanks for your efforts! Did it help out at all or make any difference? I also am trying to educate the public at large, as well as the medical professional communities.

I have been a chronic pain patient since a motorcycle accident almost took my life at age 19. It changed the road that I would travel down for the rest of my entire life because I became a chronic pain patient with injuries that sadly are permanent and there is “No treatments” or “No getting better” for me. There’s only managing the conditions available to me.. it has been 31 years since that fateful day happened and fortunately I haven’t experienced that many difficulties or issues yet obtaining my prescriptions from my long-standing physicians that are familiar with my very long and intensive medical history and the myriad of different individual conditions that I now suffer from however; I have encountered numerous physicians that are completely biased against me after their very first initial contact with me (prior to actually taking their time too actually sit down and really read my entire medical history) before they will treat me appropriately.

I have found this particular issue to be apparent mostly in emergency room settings. There have been times; let’s say when I’ve been out of town on vacation (or attending a funeral or a wedding or a birth/ an event in a different state on the other side of the country). Regardless of the reason why I am not in my normal home environment and in my local medical community where I am treated with dignity integrity and respect when unfortunately for me I’ll have an unexpected flareup which requires intravenous medication treatment and I have had to visit a hospital or an urgent care type of medical practices that have been openly rude, completely biased and basically just telling me to my face that I am just exhibiting what they believe is ”Drug Seeking behavior” just because they will ask me “what medications have you taken previously that both work effectively and help you?” All because I answer their question honestly; until they sit down and look at my files; which to me personally is extremely upsetting prior to giving me first the right medication and secondly in the dosages that I need (because I have been a chronic pain patient for 31 years I have an extremely high tolerance to narcotic medications and it takes sometimes 2 to 3 times what a non-tolerate person would take).

When anyone arrives at any emergency room in a different area or state from which you live in and when the doctor comes in and examines you asks you the pertinent questions as to what’s wrong/ what has caused this issue and what do you normally do to cure or abate said issue and when you tell them a specific drug like Dilaudid or morphine (whatever the actual drug name here is completely irrelevant) they immediately classify you / believe that you are just a “drug seeker” and it is immensely disrespectful and highly upsetting to me.. when someone has to go in somewhere for “immediate emergency medical treatment” they are already experiencing extreme symptoms which were extreme enough to feel need for immediate medical intervention and attention and to be put into a category such as drug seeking person it’s highly upsetting (to me anyways) I can’t speak for everyone but I can assume there are thousands of legitimate people out there just like me and I know that they have encountered medical professionals also of the absolute worst kind!

The doctors that take care for me on a daily basis have done their personal research regarding my very complex medical history and they know the “Cocktail of different medications and therapies” that work best for me and treat me with dignity kindness and respect. In my opinion the entire medical establishment as a whole has become extremely jaded with preconceived notion‘s about people who suffer from Cronic irreversible pain issues which require a myriad of different types of pain medications both narcotic and non-narcotic until probably maybe beginning around 10/ 15 years ago; because of the influx of people who began taking narcotic pain medications just to get euphoric feelings instead of experiencing actual real pain.

I having debilitating real /true chronic pain issues stemming from that motorcycle accident when I was 19 years old that interferes with normal basic every day life issues.. it was difficult for me to cook dinner or to have enough strength to do laundry or clean the litter box whatever… but over time I found a combination of medications (both narcotic and non-narcotic as well as cannabis and other natural/ holistic remedies) and my physical therapists developed individualized exercises to keep my mobility at its best that I do every single day and most of the time that works pretty well for me so I’m one of the fortunate ones; however I have noticed that the majority of these young new pharmacists and physicians that think they know more than I do about my individual multiple conditions as well as what strength of any particular drug or medication it takes to control my pain just because they went to medical school 15 years after my injury… it’s very annoying and upsetting.. I happen-to be an intelligent well educated woman myself and I dislike intently being spoken “down too” by doctors that are younger than me and do not know what my personal journey has been; even though I bring my briefcase that accompanies me to any medical appointment I attend that has 30 years worth of very specific paperwork describing every single surgery, every single treatment and every medication that I have ever been prescribed they have done to me. Every single surgery/ every treatment including both invasive and noninvasive treatment as they became available over the years through research.

I eagerly participated in numerous drug trials over the last 30 years (blind and open) and every new treatment that was discovered throughout the years through research and what not. Somethings helped take the edge off like when they cauterized nerves in my lower back near my spinal cord to kill the pain signals going up to my brain through my spinal cord, that helped a little bit but nothing has been able too do more than take a minor dent out of the pain levels that I feel on a daily basis. Unfortunately for however long I will live down here on planet earth there will never be a day that I do not feel immense physical pain no matter how many schedule 2 narcotics I am prescribed.. True pain patients do not get euphoric from their medications. I have found that the most that any medicine will do is just take the edge off of the pain enough to make it bearable.. that’s it/ that’s all it does for me. Personally I do not like taking schedule 2 narcotics because they get me to “loopy” if you will. It’s hard to cook dinner when you might be heavily sedated and could possibly burn down the house if you know what I mean.

But my doctors have come up with a regimen now where my pain is controlled enough to allow me to function & as a wife; as a mom and as a daughter to aging parents and being able to drive and not worry about getting arrested for driving under the influence and my quality of life most days is about between 70 to 80% good but I have my bad days as well; when I cannot get up for a week because of a flareup and my laundry gets backed up and the garbage doesn’t get taken out the house because I just can’t do it myself sometimes and it’s hard on those days. I would give just about anything if they could come up with a cure and I never had to take a pill again in my life! Please keep me updated if there’s anything new that you can think of that we can do to change the establishment regarding this topic please as I am all for it! I look forward to hearing from you in the future! From one chronic pain patient to another signing off.

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25

While I am most grateful for this venue allowing my input on said topic, I have reached the point where I am ready for some real results. I have a degenerative condition and I really need that life sustaining pharmacology that kept me going for 20 years.

The system is broken and I am tired of fiddle farting around, and I am sick of the regulatory ignorance!

How can I get the meds that allow me to participate as a functional member of society? Is that "American Dream" thing still valid today? You know, the part about going to work, getting a paycheck, paying taxes, raising the family! When a bureaucracy pulls the plug on your civil rights, what the hell are we to do??

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