Xolair/omalizumab-hair Loss (Page 4) (Top voted first)

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I have been taking this medication for 5 month and I have experience a lot of hair loss. Spoke with a friend who is taking the medication as well and has experienced tremendous hair loss. She has used Redkin Hair Products, with good success, she has managed to recoup much of her hair. Has anyone else experienced hair loss?

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59

Hi Audrey
No detectable liver problems here after a few years (May 2014) Please get more opinions as there seems like there is something else working here.
Good luck

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60

Adjust your dose Gloria and I think you will be fine. Remember the Doctor works for you.

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61

Re: Natalia Zylich (# 51) Expand Referenced Message

I'm glad your hair loss stopped. I've had three shots and my hair is falling out too. I want to stop the shot ,but need a good alternative give medication. Any suggestions?

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62

I have received 2 months worth of Xolair. I stated experiencing hair loss about a mo tb ago. I was not sure if it was for to hair processing or hormones. I am concerned because I already have fine hair. I had it cut very short a few weeks ago due to the increased loss.

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66

Re: Kittutr (# 64) Expand Referenced Message

Update. I thought my hair was going back to normal but the past few days, whenever I run my hands through it, 5-10 hairs come out without even pulling. I realize I just can't style my hair anymore because it's so thin. I used to wrap a hair elastic around twice, now it's 4 times. I rarely tie my hair back because I think it helps it fall out. I still don't know if it's the Xolair that made it fall out, or the overall stress I experienced which resulted in exacerbation of the hives? I haven't gotten hives since but I've made an effort to avoid some stress. I had 2 surgeries back to back before flaring up with hives, maybe that did it, or the 2 rounds of failing IVF I had shortly before? Xolair is too damned expensive and I hate sitting in the office for hours after my injection. Whatever. My life just sucks.

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68

Re: Audrey (# 55) Expand Referenced Message
I started the xolair since last June. My liver enzymes have been abnormal since. Ive had a liver biopsy and its good. I do believe xolair is the cause of this. Im yrying ti stretch out doses to see if this helps.

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69

Re: Christina (# 67) Expand Referenced Message

I'm also 40. It's been several months since I stopped Xolair but my hair still kept thinning. I started breaking out in hives again but I was also starting another round of fertility treatments, as well as have heavy stress. I have no idea and this isn't the time for me to look into the exact reason why I'm having thinning hair. I couldn't get another appointment for my hives before I could take a Xolair injection to stop the hives, so I got another shot. I knew at this point they would put me on prednisone or something similar because my hives had gotten to the point they were debilitating. If I manage to get pregnant I know those hormones stop my hair from falling out, so at least I'll get a break then.

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70

My hair doesn't really fall much more than before, but breaks a lot all over. It's getting thiner in ends due to the breaking. I also get very anxious and with depressive thoughs few days after the injections. Then it backs to normal. Every doctor I go said it's not a known effect but I am pretty sure that it is caused by Xolair. It happens 2 or 4 days after the injections. Anyone feeling the same? And the hair breaking and getting much thiner at the ends?

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72

I have never tried this medication but I had thinning hair from other medications & I used to use Grow Gorgeous brand hair growth serum at night. You can buy it at Ulta or CVS on line. Amazon probably has it too. I think it’s called “Hair thickening serum” but I noticed an improvement in the first bottle (lasts about 30 days) so you will probably know if it helps before it is time to buy a 2nd one.

Now I take low dose Naltrexone for CFS and I have so much mew hair growth in the temple areas my hairdresser thought someone cut a chunk off before lock downs and she was seeing the scraggly growth. Lol she was so concerned.

I wouldn’t recommend LDN specifically for hair growth because idk if it’s a thing or if it’s just helping the inflammation in my body was hurting my hair, but at 48 yrs old I am overjoyed to have thicker hair than I did at 35.

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73

Re: dee (# 7) Expand Referenced Message

Have you contacted the folks who did the study or the manufacturer? It would be interesting to see if anyone else has.
Or maybe report it to the FDA medwatch just in case.

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74

The link below has the side effects from the manufacturer. Click on Medication Guide.

https:/­/­www.xolair.com/­?cid=xol_PS_MIXLCUWB0056_11&c=MIXLCUWB0056&gclsrc=aw.ds&gclid=Cj0KCQjw-4SLBhCVARIsACrhWLXdPLIPhLwzNarKDRETW_z3OgBpi0WKf9REuOPBhf4rLUCVBGSN1pIaApn9EALw_wcB

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75

Re: Nick2021 (# 70) Expand Referenced Message

Breakage here real bad too

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76

Yes I have loss so much hair and I start taking finasteride and it helped. I stopped all medication and my hair fell out again so now I have to stay on finasteride for life

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10

Yes I have loss alot of hair but I have not been in the hospital either. Thinking about stopping the shots but I feel great can run with out using my inhaler at the finish line. Scared I will be bald if i continue is it worth it.

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29

Hello
I hope hair will come back as before too,i heard by someone on the net we need at least 2 months to see improvements or new hair coming...for sure i stopped xolair,disnt work for my cholinergic hives.unbelievable that after 4 shots i'm half bald...it seems like a chemio they say...
Hope hope hope.

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4

Hi. I am 20 years old and I have been shedding hair like crazy over the past two years..... I am not sure why this is happening. It's not genetic or hormonal because I got my blood tests done and I don't have thyroid problems. I just want to know what the best remedy is to regrow and make hair more stronger and thicker, i have started searching in internet for hair regrowth products thn i found one ..that is IHT-9 the herbal hair regrowth shampoo, i have seen many good comments for this product, i hve seen the website of this. its nice..thn i have decided that i should try this product..after a few weeks ..i seen the gud results..I m getting my hair back..Thanks to IHT-9 Herbal Hair Shampoo, the actual regrow hair shampoo.

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