Dilaudid As A Oxycodone Replacement? (Page 5) (Top voted first)

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Hi. I suffered a L1/L2 complete SCI injury some 4 years ago. After 6-7 weeks when the spinal shock wore off I noticed I had a burning pain in my lower groin area even though I can't really feel much below my hips, we thought maybe it was a UTI but all showed negative. It was diagnosed as chronic nerve pain and it never goes away, I get acute nerve pains in my legs on top of this chronic pain.

I have been taking 10mg Oxycodone four to five times per day and methadone 10mg once a day for the chronic pain + 800mg Gabapentin three times a day for the burning in my legs. The only way I have been able to keep my doses so low over the years is by being very hard on myself as to when to take the pain meds but as hard as I have tried I'm now going up to around 60mg total Oxycodone per day and 15mg Methadone.

I have a very good pain Dr and we always wanted to do a pain med rotation before levels of any one drug got too high so we have changed the Oxycodone over to 2mg Dilaudid tablets. I have been told to try anything from 2-4mg at a time, four times per day to replace my Oxycodone.

I have only just started to try the Dilaudid like 1day ago but even at 4mg it doesn't seem to work on my chronic nerve pain as well as my Oxycodone does, all it seems to do is make me sleepy and I can't have that. I work a professional demanding job where I can't be feeling out of it or tired. I was wondering if anyone here that has tried both maybe let me know if Dilaudid is normally a replacement for Oxycodone?

Should I be giving Dilaudid a few more days before throwing it off my list of pain meds? Or should it have worked straight away if it was going to work at all for me?

If it doesn't work I'll have to return to Oxycodone and hopefully find something that we can replace it with that won't have terrible side effects and also let me work normally. I guess we could increase the methodone to make the oxycodone last longer, I find the methadone great like that but that is not a real solution to replacing the Oxycodone so we can give my body a rest from that kind of opiode and hopefully reset the switch so after a short period on the replacement drug I can return to a lower dose of Oxycodone.

I would be greatfull for any advice.

Cheers.

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7

I live in the bradenton, sarasota area in fla. I'm looking to find another pain management Dr. after 4 visits to the one i am seeing know he is pushing the injections on me and my deductable for these shots are 5k this is way to much money for me to come up with and since finding out that information he has become cold and not as nice as he was before ,He is totally convinced in his mind that he is the only Dr. in the south west region that can properly give these injections he brags on himself at every visit we hardly discuss my condition all he does is try to convince me that he is the only Dr. that has these injections down to a science due to placement he claims but i can not afford them and would like to find a Dr. in my area that will listen to me and what seems to work and what does not ,I have found that 8 millagram dilaudids work with a time released 20 milligram oxycontin twicw a day but he insists on the in jections can anyone tell me of a good Dr. in my area that treats his patients with care and listens to them ,Thanks for any help.

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11

I keep reading in here about each person saying that'this drug' is the est or 'that drug' is the best and that may be true for the particular individual. Everyone is different. We don't know what allergies these people posting have, their medical records, surgeries, and they are only discussing the medicationin question. For esample I can offer advice on Medication for pain that I take and discuss that,meanwhile we are not discussing the other 18 medications I take for my illnesses, so neither is anyoen else on here. These places are great for those that suffer with this whole western med dissaster which I am a part of and it's so hard to know who to believe doctor wise,pharmacy wise,online medical sites or support sites. We just have to be super careful because it is SO easy to get meds off the street and if one of us (me included) mentions that a particular drug works great when we reply to someone to try and help them, we have to remember that we don't know their medical history and if we say something works great like a strong narcotic...what if that person knows where he or she can try 1 to see of it works before forking out more money to the dr or pharmacy and that 1 pill kills them because they are getting advice from all over the place and know one knows their medical records. This is a wonderful place to to communicate.Especially for those living with chronic symptoms and feel isolated because no one understands(which isn't their fault..gotta walk in someone's shoes to get the picture) and Doctors don't understand.I am fortunate..though I do not have insurance and have multiple servere illnesses, I was referred to a wonderful Dr who charges ma very little and does everything she can with samples and the generic program of medications at some pharmacies and anything not generic(ie: controlled substance medications) writes things out ofr me so if I split a pill in half or a quarter ends up being 1/2 the price for the same amount.But the flip side is that none of my friends understand..I'm sure you all know what I mean, I've been called flaky,not dependable..late...etc and I feel horrible..I don't like to make plans because I hate commiting to something and then getting flooded with syptoms and have to cancel. But if I don't make plans, people think I just don't care. What I nightmare and trying to even exlplain my illneses is like some one from NASA telling me how thry build a space craft...so I just don't talk about it...I rambled...but this is where this all comes in..this is a great place to feel understood and have people that don't thow you a pity party cuz if you are like me..that is NOT what we want...itn's just nice to talk and have someone say I understand because they really do. I just wanted to remind others on here that when we talk about medication whether it's claritin or oxycontin that we have so be really careful to say like..well this works really well for me, check with your dr and see if it's something safe and doesn't interact negativally with other perscriptions We all need to be a bit more careful,,,me included...to end this nice little novel...I do take 8mg Dilaudid when I have severe pain..stick with basic hydrocodone or oxycodone for daily use although any doctor I see says you need to be on something stronger daily.you can have anything you want.Thank God I am not an addict or I would be screwed. Our highest addiction in the US is to perscription meds. It is sick and our children have access to it in their home or the homes of others ....creepy. well that was my thought for the day...mostly..lets be aware when we post that we don't give out fatal advice ...blessings ya all

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15

I must say I feel your pain. I have chronic severe pain 24-7.. I've been on oxy-lortab-darvon-soma-percocet-zoloft-zanax and many more for the last 12 years. I built up a tolerance to this medication and wasn't getting much relief so I went to a nuerologist/pain specialist 2 months ago. He could not believe the cocktail of meds I was on for so long and told me I was lucky to be alive. He replaced most of my meds with Morphine Sulphate and it I felt immediate pain relief!!! I strongly recommend that you find a Dr. that is not afraid to prescribe morphine. It truly has been a life saver for me. I went through the most horrendous drug withdrawals that you can possibly imagine. It has been a little over 2 months now and I feel like a new person. Please do some research on Morphine Sulphate. It is a 12 hour timed release tablet so there is no chance of over dosing and you do not get all goofy and dopey feeling. The biggest symptom that I had was an all over body itch which has subsided. I highly recommend this to all who suffer from severe pain.
Good luck to you and warm regards,
Teresa

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9

Dilaudid and oxycodone are not even in the same league. Dilaudid is as stong as it gets, although maybe you are not on high enough dosages. I now have a Pain Pump so I don't have to worry about any side affects because the drugs no longer go through my brain, kidney or liver. Sounds to me like you need surgey and the pain and numbess is only going to get worse until you do something to take care of the reason for the pain.

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74

my 35 year old daughter was on 500 8mg dilaudid 100mg morphine. she had a tumore in her spine but they let her stay on tht amount for 2 years so nothing helps. before moving tumor they referred her to pain clinic. they threw her out and her other dr who put her on all this took her back. nothing but dilaudid and the morphine helps. they got her on 300 4s dilaudid and morphine 60mg titrating her but she says she cant go no lower. they gave her enough for so long no one will touch her. shes been on methadone suboxone loritab everything. her pain still stays after surgery. only she says she's worse. idk whats going to happen. im scared for her. they are the ones that allowed this tumor to linger on for 2 years before removing continually raising the dose to 500 8mg dilaudid and the morphine. idk what to do. her medicine don't really hold her. she thought about a pain pump or anything. im asking you for any suggestions. I don't think a person can get off of dilaudid. I just think she's screwed. PLEASE HELP. ANYONE READING THIS PLEASE... even a dr with any suggestions or ideas. I believe she will hit the street for H. she cant take the pain

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